There’s not a whole lot to say, but I figured I would post something…

Ethan’s chest X-ray today was an improvement over the first one, but he certainly doesn’t seem like he feels any better. He’s not running a high fever anymore – just a mid grade fever once or twice per day. But he pretty much cries continuously while he’s awake, and he wimpers, grunts, and grimaces in his sleep. He has really bad gas from all the crying and labored breathing. He can’t nurse or take a bottle without gulping down a ton of air. Its a tough cycle… He has trouble breathing, so he ends up gulping air. All the air builds up and causes pain so he tenses up and breathes even harder. He gets so tense he can’t really burp or fart all that well, and his belly ends up blowing up like a balloon. His belly was so distended today, they ordered an x-ray just to make sure that there wasn’t some other problem. As often as they can they give him a tylenol suppository and some mylicon and he will calm down and “deflate”. As soon as the tylenol wears off, it all starts again.

He does wake up and want food a little more often now. And he’s not losing weight. Let’s hope that he continues to maintain or gain a little because he’s already behind from all the weight he lost with RSV.